Choose Your JOY
  • Home
  • Cancer "JOY"
  • Smell JOY
Follow my unexpected cancer journey...the good, the bad, and the ugly!
WANNA HELP?! Click here : )

​CANCER CHRONICLES

Picture

Slowly But Surely!

3/3/2019

0 Comments

 
Picture
This week I did my "follow up" CT scan since an active spot (different from my original mass) popped up on my post CAR-T 3 month PET scan, so they could see it better and get more info etc. The oncologist office called a few days later and said they think it's ok (so who knows what it was). My original mass measured 38x51 in August 2018 at one of my many scans after chemos etc. Now my original mass is 22x28, so yes it's still there BUT it has obviously shrunk. Fingers crossed the CAR-T continues to show its ninja skills (assuming that's what is finally helping it shrink).

Also, I am finally half way done with my monthly IVIG infusions (3 of 6) so hopefully my immune system continues to get stronger...although this time of year has not been the easiest to not get sick! Just now getting over whatever loveliness the kinders gave me weeks ago.
And Brodie continues to live his best rockstar life...his cancer scan/surgery follow up is in May. This is his "I love you, I surely don't mind being your example picture for my cousins Dr. Suess day craft" : )
Picture
0 Comments



Leave a Reply.

    "You either get bitter or you get better. It's that simple. You either take what's been dealt to you and allow it to make you a better person, or you allow it to tear you down. The choice does not belong to fate, it belongs to you."
    ​~Josh Shipp

             

    Archives

    February 2020
    September 2019
    August 2019
    July 2019
    June 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    August 2018
    June 2018
    April 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017

    When Cancer Comes a Knockin'

    Timeline

    On August 2, 2017, Brianna was diagnosed with Mediastinal Large B-Cell Lymphoma. Beginning Monday, August 14, 2017, Brianna will begin chemotherapy treatments. She will be commuting to Austin for 18 weeks to receive treatments. This site is set up as a donation page to help Brianna and her family cover medical costs and living expenses, as well as a one stop shop to get updates on how chemo is going and even buy a shirt or two in support!

    UPDATE:
    After getting her final PET scan to confirm the aggressive chemo did it's job, we got the news that it hadn't and that the tumor was still active when it shouldn't of been. Brianna is now undergoing radiation for 5 weeks, everyday in Austin. 


    UPDATE March 2018:
    Brianna begin having the same cancer symptoms as she did this past summer during spring break, except more painful this time. She was sent to get a CT scan which showed her cancer had returned. She then met with her oncologist who planned the next steps which include to do more chemo (a differnt regimen this time) followed by a stem cell transplant. 
    She thought she was done....she was done.....and now she is having to start the cancer journey all over again...including losing her hair that had just start growing back.


    UPDATE
    END OF MARCH - JUNE 25th
    ​(at the moment....things have yet to even begin apparently.)

    If I didn't feel like I was really dying or truly out of options to live....I do now. Remember  I was basically on our plan F and everything was just getting worse instead of better. I really thought I was done these last couple weeks and being in the hospital for another little week vacay. I finally updated by blog since so many people were asking, so you can read the detailed updates.

    October 2018 Update:
    Insurance has finally approved all of the CAR-T procedure and I will be getting my T-Cells retrieved from my body next week. (Oct 10th if all goes as planned)


    MARCH 2019
    The first post CAR-T pet scan showed the main mass has shrunk in size, even though still active. Hopefully, the CAR-T will continue to work its magic over the next few months before the next scan.


    To donate to Brianna's GoFundMe page, please make sure the donation is made on the GoFundMe Page found here:
    ​
     https://www.gofundme.com/teambonnet
Powered by Create your own unique website with customizable templates.
  • Home
  • Cancer "JOY"
  • Smell JOY