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I Won A Vacation!

9/5/2017

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Well maybe it's not a vacation....and maybe it wasn't free.....and maybe it doesn't include anything fun or luxurious....BUT I am officially having a 6 day stay-cation at the hospital this week (M-Sat). At least it gets me out of the house?
So, since my chemo week fell on a holiday week (Labor Day) and my oncologists office is closed on holidays so I couldn't go in to do my chemo, I ended up with this oh so fun 6 day stay-cation. Basically, since I have to endure chemo 5 days a week, obviously starting on Mondays, I had to have a plan B to continue my chemo schedule without getting bumped a week. I didn't want to push my timeline back a week and go into January so this was the only option and health-wise also the best to stay on track.

I'm sure you're wondering why I just couldn't do my Monday treatment in the hospital and finish the week in my drs office....ya I asked that! So to hopefully not be too confusing, when you do chemo in the hospital they are on no schedule or rush whatsoever. When I go to my treatment in my oncologists office, I have a set time, a set nurse, I know how long it's going to take etc. In the hospital it couldn't be more opposite. A perfect example, I was told to get to the hospital at 8:30am Monday to get admitted. I got here, they started all my paperwork and sent my orders in for my chemo bags to start getting ready. I literally didn't get my chemo bag to start in my IV until almost 6pm. Ya, it's ridiculous. So, since everything is delayed my Monday bag won't get done till 24 hours later, Tuesday around 6pm, so I wouldn't have time to be discharged then get to my Dr and start my Tuesday chemo etc. My bags run for 24 straight hours so I literally have to be in the same location the entire week or timing wise it just doesn't work out, unfortunately. So here I am....

I've decided to wear a different pair of fun or inappropriate socks each day I'm here....well, because why not?! I'm also starting to get to wear all the hats I've been sent so changing those out daily also! I do another post later this week with all my socks and hats! For now, I'm just attempting to not be bored and get some sleep since that hasn't been going very well...
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    "You either get bitter or you get better. It's that simple. You either take what's been dealt to you and allow it to make you a better person, or you allow it to tear you down. The choice does not belong to fate, it belongs to you."
    ​~Josh Shipp

             

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    When Cancer Comes a Knockin'

    Timeline

    On August 2, 2017, Brianna was diagnosed with Mediastinal Large B-Cell Lymphoma. Beginning Monday, August 14, 2017, Brianna will begin chemotherapy treatments. She will be commuting to Austin for 18 weeks to receive treatments. This site is set up as a donation page to help Brianna and her family cover medical costs and living expenses, as well as a one stop shop to get updates on how chemo is going and even buy a shirt or two in support!

    UPDATE:
    After getting her final PET scan to confirm the aggressive chemo did it's job, we got the news that it hadn't and that the tumor was still active when it shouldn't of been. Brianna is now undergoing radiation for 5 weeks, everyday in Austin. 


    UPDATE March 2018:
    Brianna begin having the same cancer symptoms as she did this past summer during spring break, except more painful this time. She was sent to get a CT scan which showed her cancer had returned. She then met with her oncologist who planned the next steps which include to do more chemo (a differnt regimen this time) followed by a stem cell transplant. 
    She thought she was done....she was done.....and now she is having to start the cancer journey all over again...including losing her hair that had just start growing back.


    UPDATE
    END OF MARCH - JUNE 25th
    ​(at the moment....things have yet to even begin apparently.)

    If I didn't feel like I was really dying or truly out of options to live....I do now. Remember  I was basically on our plan F and everything was just getting worse instead of better. I really thought I was done these last couple weeks and being in the hospital for another little week vacay. I finally updated by blog since so many people were asking, so you can read the detailed updates.

    October 2018 Update:
    Insurance has finally approved all of the CAR-T procedure and I will be getting my T-Cells retrieved from my body next week. (Oct 10th if all goes as planned)


    MARCH 2019
    The first post CAR-T pet scan showed the main mass has shrunk in size, even though still active. Hopefully, the CAR-T will continue to work its magic over the next few months before the next scan.


    To donate to Brianna's GoFundMe page, please make sure the donation is made on the GoFundMe Page found here:
    ​
     https://www.gofundme.com/teambonnet
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