Follow my unexpected cancer journey...the good, the bad, and the ugly!
Gotta dress the part...
I did my 3 days of chemo wed-fri last week to basically wipe out my immune system so my T-Cells will have room to show thier newly learned ninja moves. Unfortunelty, this chemo made me pretty sick...for several days....so needless to say I was ready for Sunday to get here to be admitted into the hospital. When doing Car-T (here atleast) they want you to be admitted the day before to make sure everything is ready to go the day of infusion the following Monday and no hold ups. So I got admitted, my port connected and then a CT scan done Monday morning for the before comparison.
Only time will tell...
I mentioned the other day that this last chemo would be my last ever, then was asked what if the Car-T doesnt work etc. Yes, this is a huge possibility (more probable than it working actually), however not only have I already done all that there is to do, but even if another chemo was offered to me, I would opt out. Going thru chemo the rest of your life is no life at all, you have to be ok with nothing working and coming to terms with dying and not being in pain anymore.
Yes, there are countless side effects to car-t. I could be lucky (ha) and just get the bare minimum, or I could get everything possible. Here are some things others have experieneced that may or may not happen to me:
~going into coma.....a day to a week or so
~temperature, flu like symptoms where youre sweating 24-7
~forgetting who people are, where you are etc
~forgetting how to walk/talk/write etc
~complete confusion and not knowing where you are
The "plus" to all the side effects are that none of them are lifelong and most people dont even remember any of it happeneing. However, the reason I have to stay in Dallas for a whole month is that any of the neuro issues could start at anytime and I have to be close to the hospital to be readmitted when it happens.
PS: No flowers allowed on the transplant and ICU floor!
If you wanna be Wonder Woman....you gotta dress the part! Obviously cape included...
I'll post the Car-T infusion pics and fun later...
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"You either get bitter or you get better. It's that simple. You either take what's been dealt to you and allow it to make you a better person, or you allow it to tear you down. The choice does not belong to fate, it belongs to you."