Choose Your JOY
  • Home
  • Cancer "JOY"
  • Smell JOY
Follow my unexpected cancer journey...the good, the bad, and the ugly!
WANNA HELP?! Click here : )

​CANCER CHRONICLES

Picture

Bald Issues

11/21/2017

1 Comment

 
Picture
If you remember from the beginning, I named this blog, "The Good, the Bad, and the Ugly".....I now introduce you to some more ugly! 

You have good days and you have bad days. Some days I don't come out of my room, other days I'm on the couch sewing all day with Brodie. The key is to enjoy your good days and realize there will always be bad days. 

Someone asked what the infamous cancer/chemo mouth sores look like...here's the best picture I could get that definitely falls under the ugly category, sorry not sorry. #ItsMyLife
I'm lucky to which I don't get too many and they usually don't last too long. I do however, have the fun bad taste in my mouth most weeks. Usually my week before chemo it wears off a little....and you eat everything in sight because you can actually taste it! Then chemo weeks come and your doomed...but of course you still eat because....well hello, a girl's gotta eat!

Finally, I wanted to talk about attempting make up when you're bald. Who knew this would be such a feat! First, when you have hair you know you obviously blend in your makeup to your hairline. Cough cough, well when you don't have a freakin' hair line thats a bit hard. You don't want to put make up on your head but you also don't want to have a visible color line change on your forehead. As you've read, I'm not a fan of wigs, but at least it helps in the makeup catastrophe. However, if I'm able due to the "occasion" I choose to be bald. Theres no feeling normal with cancer, being bald or with a wig on either. But I am more comfortable without it than with it.

Med update below...
Picture
My levels have been the lowest they've gotten lately, which
A) means I never want to leave my bed
B) means I can't be around people and
C) means I have a chance of having to get a blood transfusion.
​He brought it up again yesterday after my red count was the lowest it had ever gotten. So fingers crossed thats not a going away present I get after my last chemo!

The clock is ticking! Only a few days left till my last chemo day and I couldn't be more anxious! I've been applying for jobs and so far have one interview so fingers crossed I'll be back in a school come the first of the year!
1 Comment
Mary Ann Parker
11/21/2017 06:47:28 pm

You are an inspiration, funny and delight!

Reply



Leave a Reply.

    "You either get bitter or you get better. It's that simple. You either take what's been dealt to you and allow it to make you a better person, or you allow it to tear you down. The choice does not belong to fate, it belongs to you."
    ​~Josh Shipp

             

    Archives

    February 2020
    September 2019
    August 2019
    July 2019
    June 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    August 2018
    June 2018
    April 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017

    When Cancer Comes a Knockin'

    Timeline

    On August 2, 2017, Brianna was diagnosed with Mediastinal Large B-Cell Lymphoma. Beginning Monday, August 14, 2017, Brianna will begin chemotherapy treatments. She will be commuting to Austin for 18 weeks to receive treatments. This site is set up as a donation page to help Brianna and her family cover medical costs and living expenses, as well as a one stop shop to get updates on how chemo is going and even buy a shirt or two in support!

    UPDATE:
    After getting her final PET scan to confirm the aggressive chemo did it's job, we got the news that it hadn't and that the tumor was still active when it shouldn't of been. Brianna is now undergoing radiation for 5 weeks, everyday in Austin. 


    UPDATE March 2018:
    Brianna begin having the same cancer symptoms as she did this past summer during spring break, except more painful this time. She was sent to get a CT scan which showed her cancer had returned. She then met with her oncologist who planned the next steps which include to do more chemo (a differnt regimen this time) followed by a stem cell transplant. 
    She thought she was done....she was done.....and now she is having to start the cancer journey all over again...including losing her hair that had just start growing back.


    UPDATE
    END OF MARCH - JUNE 25th
    ​(at the moment....things have yet to even begin apparently.)

    If I didn't feel like I was really dying or truly out of options to live....I do now. Remember  I was basically on our plan F and everything was just getting worse instead of better. I really thought I was done these last couple weeks and being in the hospital for another little week vacay. I finally updated by blog since so many people were asking, so you can read the detailed updates.

    October 2018 Update:
    Insurance has finally approved all of the CAR-T procedure and I will be getting my T-Cells retrieved from my body next week. (Oct 10th if all goes as planned)


    MARCH 2019
    The first post CAR-T pet scan showed the main mass has shrunk in size, even though still active. Hopefully, the CAR-T will continue to work its magic over the next few months before the next scan.


    To donate to Brianna's GoFundMe page, please make sure the donation is made on the GoFundMe Page found here:
    ​
     https://www.gofundme.com/teambonnet
Powered by Create your own unique website with customizable templates.
  • Home
  • Cancer "JOY"
  • Smell JOY