I can almost guarantee this will be one of the only days I do two blog upates on the same day BUT I figured since it was my first day I should update how it went...
The good: initially we thought/were told I was going to have to do chemo EVERY week for the entire 18 weeks. Now it's been clarified that I do a full week of chemo M-F with my additional shot on Friday for my white blood count, then have 2 weeks "off". Now during my 2 weeks "off" I still have to come in T/Th to get labs done to make sure my levels are ok and this determines how much higher or lower dosage they give me my next chemo round.
The bad: However, apparently the 2 "off/lab weeks" are when you are the sickest so not sure if that's an upside of not having to come in for treatments or not. BUT, only 30 total days of chemo/6 full weeks sounds a whole lot better than 18 full weeks so I'll take it! So, I will have 3 days a week on my 2 consecutive "off/lab" weeks we wont have to drive into Austin...even if I am feeling bad, I'll take it! I'm hoping I will feel ok enough to sub on these days unless it's a time where a lot of sickness is going around and then I can't take the chance. I was told if I get sick at all during my 18 weeks they have to postpone and push back a week which would then bring me in to still have chemo treatments in January which I will do anything to not have to do. So, my plan on subbing may or may not work out...tbd.
The ugly: Oh dear, the biggest surprise of all.....I also found out today I have a new best friend that gets to go everywhere I go 24/7 that's attached to me...he's officially named the Wolf Pack (no I didn't choose the name, and no the liquid in him unfortunately has no connection to any Hangover movie or I might like him a little more)! Apparently, I'm one of the lucky ones that not only has to continue chemo at home during my full chemo weeks 24/7, but I also have the largest quantity you can have so my Wolf Pack is quite the lug around. So, showering, sleeping, eating, and just doing pretty much anything is going to be quite the sight! I will have this lovely contraption hooked up to me 24/7 from M-Th on full chemo weeks then they keep it Friday after my treatment and I don't have it for 2 weeks until my next full chemo week. So much for being cancer incognito until my hair falls out, this thing is quite the fashion statement!
Please excuse my swollen face/neck and no make up! As you can see the rest of my cancer friends have an easy 40-50 years on me so I felt like quite the youngin' for once! And you just can't beat coming home to gorgeous flowers ; ) sure miss my sweet Beachers! Oh, and make sure you get a good look at my new bestie, Wolf Pak!
On an unexpected Cancer journey...